Showing posts with label Pain. Show all posts
Showing posts with label Pain. Show all posts

Wednesday, 2 March 2016

Story of Pain #1; Chronic Back Pain

I broke my sacrum in a freak accident at the age of 18. It took almost three months to heal during which I could not sit comfortably and often rode kneeling facing backwards in the seat to travel. I whined, griped about back pain and took pills and even non-prescription drugs.

Through the years, I also travelled, climbed mountains, Scuba dived, taught school, roller-bladed, skied and had adventures generally allowing the energy of youth to keep me moving. In 1975 using "Be Here Now" by Ram Das, I started doing yoga. Osteoarthritis developed in my knees starting in 1977.

In 1989, now 45 years old and still griping, I decided that I wanted to live longer with less pain. In May 1989, a physiotherapist started me onto an exercise program targeting my back. 

I found exercising to be boring so, in order to do it faithfully, I combined it with watching t-v. I became so accustomed to exercising in the living room that even our guests would be exposed to my routine. When I returned to the physiotherapist in September, 1990, I said “I feel better, I feel stronger, but my back still hurts a lot”. He poked me in my jelly-like soft abdomen. “What are you doing about these muscles?” he said. I replied, “I don’t like sit-ups”. There were a pile of non sit-up exercises for my core. As I faithfully continued adding the new exercises to the other, I experienced a pain-free week in April 1991, six months later.

It didn’t always remain pain free. I learned to change many of the ways that I did things – I changed position a lot, I stopped the car every hour on long trips, I put a foot bar in front of counters and desks, I lost ten pounds of weight, I used heat and saunas. I did not stop exercising – in fact, I added a yoga routine in order to increase both strength and flexibility. Sometimes I took naproxen, a non-steroidal pain and inflammation reliever. 

Osteoarthritis is a progressive disease and exercise didn’t “cure” it. Exercise does, however, make our bodies release endorphins which are natural pain-killers. This seems to be a good thing.

In November 2011, I fell on ice and severely jarred my pelvis and lower back. I struggled back to mobility with the help of my physician, the physiotherapist and a chiropractor. I had to severely modify the exercise program at first but by March 2012 I was well enough to go to Mali with a medical team. Unfortunately, I fell again on uneven pavement while running to avoid tanks during the military coup. When I eventually was able to walk and return to Canada, I made appointments with the physiotherapist, my physician, the back institute specialist, the chiropractor and a mental health counsellor (for PTSD prevention).

In May the back specialist insisted upon a back x-ray, reviewed it with me, emphasizing the deformities. The radiologist had read it as having “osteoporosis, severe osteoarthritis and a 60 degree roto-scoliosis”. In short, a very bad back. At that time, I was using two canes, doing modified exercises and, seeing myself as an invalid. He merely reinforced the importance of acknowledging that I had a severely misshapen back. The view from there was dismal. I was depressed.

A month later, my eldest daughter chided me when i was whining, “so which of these things is acute? Aren’t they all things that you have had for years?”
She was correct – in fact, the scoliosis had probably been present since my teens. 

At yoga in June, the instructor asked that each person “create an intention” for the class. I wanted to “see my back from the outside” and erase the vision of the x-ray. During that session, I was able to have a glimpse of a better back but only a glimpse. I had to consistently and mindfully re-envision my back.

Meanwhile I was learning more about backs. While I was recovering enough to fly home from Mali, my partner was collecting material about backs. A foot high stack of literature was sitting on the living room table. I found new and sometimes non-back exercises that helped backs. Stride – who knew that a long stride was hard on the back? – I modified my walking.  I became stronger and soon there was only one cane and then often none!

The real epiphany – and the reason that I’m writing this – came in the summer of 2015. I returned from seeing my family physician in Saskatoon. He had asked me how much pain I had – I had replied that it was almost always a 2/10, sometimes a 6/10, never 0/10.

Two out of ten all the time? This didn’t make sense. A re-set was in order. If I was always 2/10, then 2/10 was my zero. Using Melzack’s gate theory of pain, I reasoned that a person should be able to simply re-set the “gates”. While I could not change the abnormalities in my back, perhaps I could change my perception of the pain. In a sense that is what distraction, music, movement, and eating does to decrease awareness of pain. In this case, every time I became aware of the pain in my lower back I mentally “closed the gate” just above the painful area. At first this was quite tedious and took quite a bit of effort.  

But in fact, the process took less than six weeks! In mid September I realized that the gate seemed to be permanently closed. Most of the time, I had no pain. It was so hard to believe that I told no one. Today I remain free of that nagging low back pain that I have associated with my broken sacrum.

Not that I have quit exercising, weight control and all of the other good things including moving around – even at meetings, I get up and walk to the back of the room.

On my way through an airport months later, looking for something to read, I picked up Norman Doidge’s “The Brain’s Way of Healing”. Dr. Doidge explains how what I did works, not just for me but others as well! I heartily recommend it.

Monday, 7 March 2011

Painfree - NOT!

A recent discussion on a doctor's listserv started with the topic of opiate prescribing and worked its way around to a discussion on what contributes to pain and the more philosophic discussion about how different people experience pain differently.

I have chronic pain; I have had it almost all of my adult life. Most of the time I use various distraction techniques to deal with it and most of the time one or the other works.

When our father was dying of amyotrophic lateral sclerosis, some of his children donated blood to a Winnipeg specialist who was doing a genetic study on auto-immune diseases. (We never did know what happened to the study.) I was a first year medical school student so, without the assistance of doctor Google, didn't know enough to ask exactly what he had tested. When each of us returned for results, the doctor predicted that two of us, one sister and I, had a 50/50 chance of developing an auto-immune rheumatological disease. My sister developed lupus in 1991. The lumps on my fingers and the x-ray changes of my joints tell my doctor that I have osteoarthritis.

Back when we were in our early 40's, we sat around the table with our friends sharing our experiences of entering our "middle age". What perspectives had changed? Almost everyone had children so the changing attitudes towards child-rearing made for some of the conversation. Wrinkles and grey hair started a round of the changes that we had in physical expectations. When it came my turn to share,"my hot joints became painful". Someone giggled but everyone looked at me, "hot joints? What do you mean, 'hot joints'". I was surprised to learn that joints which felt "hot" were not a universal experience.

When did the sensation begin? I think that it was in my early 20's. I broke my sacrum in a freak direct-blow sledding accident when I was 18 so back pain was always with me causing great problems when Marlene and I flew, sailed, trucked, trained or bussed around South America in 1966.

By the time I was 40 years of age, I was popping pain pills. By 46, I had discovered that NSAIDs had a positive effect on menorrhagia but my stomach was a mess. Acetaminophen with codeine caused constipation, stomach cramps and an annoying peri-oral hypaesthesia. Acetaminophen by itself caused a central headache. I vomited with morphine and had incredibly distracting dreams with oxycodone. Tiaprofenic acid, a discontinued NSAID, helped. Generally, I was miserable. When I wasn't busy, I drank beer or wine. 

In 1989, I picked up a pamphlet on exercises for the ailing back. There was probably nothing new about the activity - if literature would have removed the chronic back pain, I'd have been cured for I had collected practically every piece of literature on back cures. This time was different because I actually started to do the exercises. To my surprise I started to experience a decrease in pain so I went to a physiotherapist for more exercises.

In April 1991, I had a back-pain-free week! Getting rid of back pain, however, gave me a chance to experience joint pain. On the basis that exercise will do no harm and probably would do good things, I now have a 50 minute back/yoga exercise routine in the morning and about 30 minutes in the evening.

When I injured my back three years ago, investigations showed a 60 degree rotoscoliosis and severe osteoarthritis as well as osteocytopenia. The broken sacrum with its irregular healing could be seen. The x-ray looked like that of a woman much older than I.

While my back is not often the primary site of pain nowadays, it always lingers in the background. If I fail to do my morning exercises, I can predict that it will be back. Other joints behave like OA, right now my hot painful swollen joints are my CMCs and my MCPs (both of the joints on the both thumbs) but the pain in my knees, ankles, and hips is present as well, just not as noticeable as the thumbs.

How do we measure pain? By the truly subjective method of comparing the "worst pain ever experienced with the current pain"! The worst pain that I've had was after the reimplantation of an amputated distal digit. If that is rated a "10", my usual pain is a "3". Some mornings it is a 5 or a 7.

I think that pain is part of being alive.